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January 27, 2005 -- Maintenance #7 (Day 17-21) I took Katie to see Dr. Julie yesterday to get a CBC and a check-up. She still has a nasty cough but she looks much better, and all of her counts went up. Katie is finally back at school today after being out for three weeks. Katie's ANC rose to 918 (from 330 on Saturday). We were able to restart her nightly and weekly chemo again last night to 40-60% the normal dosage. When she returns for her final vincristine (VCR) IV push next Wednesday, Dr. Julie is hoping we can increase her chemo back to 100% for the duration of her treatment. We'll have to see where her counts and ANC are next week. As of today, Katie has 24 more days/nights of chemo left!!! We've got Katie's port removal surgery scheduled for Tuesday, February 22. We'll go to the clinic to get a CBC the Monday before. As long as her ANC and counts are good, and she has no signs of a cold or fever, they will go ahead with the surgery. Please continue to pray that Katie remains in remission, and everything goes smoothly as she transitions into OT. Thank you for all the love and support you have shown our family throughout Katie's treatment. We are so blessed to have you all in our lives. Here is Katie's ANC, chemo/meds and schedule: January 26, 2005: ANC 918. Restart chemo reduced to 40-60% as follows -- reduce nightly 6MP to 25mg (1/2 tablet) every Mon-Fri evenings and 50mg (1 tab) Sat-Sun evenings, reduce weekly MTX to 7.5mg (3 tablets) on Wednesday evening, 1/2 tab Bactrim 2 times per day for 2 days (Friday through Saturday), 1 Viactiv daily, 1/4-1/2 tsp Zofran every 8 hours or as needed for nausea, 1/2 capful Miralax as needed for constipation/hard stools. CBC, and her final IV VCR: Wednesday, February 2, 2005 Last chemo/meds: Saturday evening, February 19, 2005 Port removal: Tuesday AM, February 22, 2005 First OT visit: (to be scheduled) We have gotten a great response for Katie's cookbook -- KATIE'S COOKING FOR A CURE -- but we still need a lot more recipes to make this cookbook a success! You can E-mail or snail-mail your recipes to me. Please let everyone you know about this project!! The more recipes we get, the better the cookbook will be. Thanks for your help! |
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