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July 19, 2005 -- OT visit #4 Happy Summer!!! Katie had her #4 OT appointment today, which included a CBC and a short visit with Dr. Julie to discuss some concerns we've had. Since John or I don't know what late effects (from the chemo) to expect, we always turn our questions to the oncologist before calling her pediatrician regarding any symptoms she has. Katie has been doing VERY well. Her counts this month were all in normal range (WBC 7.9, Hgb 12.7, Plt 325, ANC 3476). Lately, though, she has been complaining of headaches and nausea. Several days/nights a week she has been asking for Zofran for her belly aches. I'll need to keep a log of what/when/where her headaches and nausea are happening so we can figure out why she's having them. Instead of Zofran, I give her Tums to help settle her stomach upset. Katie lost her first tooth while we were vacationing at the Jersey shore a couple of weeks ago! She was excited about it coming out, but not thrilled about letting the tooth fairy have it. So, it is safely tucked away in her drawer so the tooth fairy can't find it. She's got her second loose tooth now, and she has already told me that the tooth fairy can't have that one either!! Camp Sparkle at Gilda's Club is a huge hit with Katie. She's been going three days a week and is loving all the crafts and activities they offer. They've done tie-dyed shirts, paper maché and Mandalla art. Area restaurants are donating lunches for the kids which include pizza, sandwiches, and chicken nuggets!! Special guests come in each week to talk about various topics like sun safety, gardening, animals, making musical instruments, and scrap booking. Plus they have free time to play in the playground. It is such a fun time!! KATIE'S WISH AWARENESS POSTAGE STAMPS COMING SOON!!!! We're excited to announce that in August we'll be selling CUSTOM FIRST CLASS POSTAGE STAMPS through Katie's online stores. Each of of the shops will have it's own stamp design. Some of the designs will include: CANCER SUCKS, CURE CHILDHOOD CANCER, and Katie's original artwork for HOPE and LOVE. We will let everyone know when they become available. The proceeds for Katie's shops will go to Gilda's Club Delaware Valley. Kisses for Kyle Foundation - 5K Run / 1 Mile Fun Walk KATIE’S WISH is participating in the first Kisses for Kyle Foundation's - 5K Run / 1 Mile Fun Walk to help children who are battling cancer. KATIE'S WISH wants to be the largest team and win the Outback Challenge!!! Date: Saturday, September 17th, 2005 All participants must register by September 9th to be eligible for the Outback Challenge. You can register with our team online or by mail. Please go to www.kissesforkyle.org for more information. When registering, please remember the following information... Team name: KATIE'S WISH We hope you’ll join us for a day of family fun and fitness for a good cause!!! Many, many thanks again to all of our sponsors and contributors!! I know many of you are anxiously waiting to receive your cookbooks. We are still in the process of inputting the last stack of recipes and sponsor ads, plus editing and proofreading the cookbook, and finalizing our HUGE list of participants. As soon as the book goes to print, we will have a better idea of when the release date will be. Due to the overwhelming response, Katie's cookbook is MUCH BIGGER, and BETTER than we had anticipated. We may be faced with the possibility of having to raise the price of the cookbook a few dollars at the time of it's release. We truly believe it will be well worth it!! Light the Night with us! Many of you who have participated in the Leukemia & Lymphoma Society's Light the Night Walk in the past will be receiving a letter from the Leukemia & Lymphoma Society about this years Light the Night Walk. Please take a moment to read the letter. It was written by me, Katie's mom, and it tells Katie's story. It also explains why we chose to participate in the Leukemia & Lymphoma Society's Light the Night. You can also view the letter here. Light the Night Walk for Montgomery County, PA is October 15 - Gwynedd-Mercy College, Gwynedd Valley, PA. You can register here to walk with our team: KATIE'S WISH. Thanks!! We hope you'll Light the Night with us this year!! Thanks to everyone for your continued prayers for Katie and our family. |
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