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August 8, 2004 -- Maintenance #5 (Days 15-18) Thanks so much for all the encouraging emails for Katie. I haven't had time to respond to you each of you, but wanted you to know we got all the messages and we appreciate all your kind words. We are still here at CHOP. Katie's ANC has been slowly increasing and then went down again. It's up to 112 today, but her platelets and red blood cells are a dropping. If they continue to go down, she'll need to get a blood transfusion. We're hoping to get out of here in a day or two provided her ANC is higher. She's still not eating much, but at least she's eating a bite here or there. As long as Katie drinks 2ounces of fluid every hour, they will keep her off the IV fluids. Her mouth sores have greatly improved. Once we get home, Katie will have to be isolated from other kids until her ANC bounces back. She is due for her next round of IV chemo in 10 days. Hopefully, she'll have rebounded and will be able to continue with her chemo. It makes me very nervous for her to be off her chemo for so long. (Think positive thoughts...) Katie has been feeling much better today and has become the social butterfly here. She had 2 play dates with Isabel who is a few doors down the hall. She has also been taping large notes to her window which overlooks the atrium. A girl named Maddy from the bone marrow transplant wing has been writing back. Katie made a card for her and had a nurse deliver it for her. Maddy came over to visit and brought Katie some Fruity Pebbles cereal and a drawing. She's enjoying her new friends. Thank you again for keeping Katie in your thoughts and prayers. I hope my next update is from home. Here is Katie's ANC since last update: All meds except antibiotics being held until August 18. August 6, 2004: ANC 68. August 7, 2004: ANC 51. August 8, 2004: ANC 112. |
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