|
September 14, 2004 -- Maintenance #5 (Days 47-55) Well, this summer has certainly been a roller coaster ride for Katie. We were hoping September would be better, but we were wrong. Katie had a fever again over the weekend. We rushed her to the ER at CHOP with a 102.6 fever on Saturday. Her ANC and white blood cell count were unusually high and she was dehydrated. She was admitted for fluids and antibiotics, and was released after 24 hour observation with no fever and counts back into normal range. Monday evening, after she was complaining of a severe headache and nausea, we took her temp again. She had a fever of 103.6. We were back to the ER at CHOP and she was admitted again. Once again her ANC and white cell counts were very high. The concern right now is the headaches and vomiting with fevers. She is getting a battery of tests to determine the source of her headaches. The oncologists want to check for meningitis, brain tumors, brain bleeds, and abnormal cells in her central nervous system (CNS). She had a CAT scan this afternoon. She is being prepped for a LP (lumbar puncture and spinal tap) to check the CNS for abnormal cells. She may have the LP tonight or tomorrow before she has an MRI. Need less to say, John and I are getting no sleep and are very worried. We are hoping that the headaches are migraines or something associated with her chemo that can be adjusted. We are waiting on her blood cultures and hoping there is no bacterial infection. Katie is having a tough time here and is feeling very ill. Please say some extra prayers for Katie tonight. Here is Katie's ANC and chemo/meds since last update: September 11, 2004: ANC 8332. September 12, 2004: ANC 2649. Chemo/meds at home -- Continue at 100% for all chemo. 50mg (1 tablet) 6MP Monday through Saturday evenings and 75mg (1.5 tablets) Sunday night, 15mg (6 tablets) MTX weekly on Wednesday evenings, 1/2 tab Bactrim 2 times per day for 2 days (Friday through Saturday), 1 Viactiv daily, 1/4-1/2 tsp Zofran every 8 hours or as needed for nausea, 1/2 capful Miralax as needed for constipation/hard stools. September 14, 2004: ANC 8280. Hold Zofran -- can cause migraines. Continue with all other meds/chemo at 100% |
||||||||||
|
||||||||||