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September 27, 2004 -- Maintenance #5 (Days 64-67) This poor kid can't get a break!! Katie ended up with a fever again on Saturday. She slept most of the day and complained of an upset tummy. Her fever hovered around 100.7 for a few hours and then went up to 101.9, so we were off to the ER at CHOP around dinner time. (We've become regulars at the McDonald's at CHOP.) We went through the usual difficulties accessing her port. It's been really tough on her. She doesn't like being in the ER and pleads with the nurses to "just get a room upstairs" for her. Her ANC and white blood cell count were very high again. They gave her a broad spectrum antibiotic, some fluids to fend off dehydration and sent us home. She's still not feeling well. Her fever is still hovering at 101.9 and she still doesn't want to drink or eat anything. We are allowed to give her Tylenol but she refuses to take the children's or infant's because she doesn't like the flavor. She will take the adult Tylenol dissolved in a bit of water. It tastes nasty!!! Go figure. We hope this isn't an indication of how this school year will be. Katie will be back in school after her fevers are gone and she's eating and drinking normally again (hopefully Tuesday). Many thanks for keeping Katie close to your hearts and in your prayers. We deeply appreciate it. For the latest information on KATIE'S WISH and Light the Night registration, how to make a donation and the Walk itself, please click here. Katie's ANC and chemo/meds since last update: September 25, 2004: ANC 6818. Continue with all other meds/chemo at 100%. 50mg (1 tablet) 6MP Monday through Saturday evenings and 75mg (1.5 tablets) Sunday night, 15mg (6 tablets) MTX weekly on Wednesday evenings, 1/2 tab Bactrim 2 times per day for 2 days (Friday through Saturday), 1 Viactiv daily, 1/2 capful Miralax as needed for constipation/hard stools. |
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