What?  PKU and Allied Disorders of Florida Support Group Meeting

 

When?  Sunday December 4, 2006

 

Time?   5:45 – 6:45pm

 

Where?  New Tampa Family YMCA  

              16221 Compton Drive 

              Tampa, Florida 33647

               813-866-9622

 

 

*Promptly at 6:45pm, the PKU of Florida Support group will move to Winner’s Grill (next to Publix #344  @ 16023 Tampa Palms Blvd) in the reserved “back room” for dinner at 7:00pm.  

Arrangements have been made to accommodate medically restricted diets for the evening thanks to Winners, SHS and Cambrooke Foods!  All special low protein foods and ingredients will be available next door at Publix #344 after the dinner.

Winner’s will cook your choice of these low phenylalanine entries for $3.99 each:

1. Cambrooke Foods’ Low Protein Cheese Quesadilla (courtesy of Cambrooke Foods)  with a side of lettuce, tomato and salsa.

2. Cambrooke Foods’ Low Protein Plain or Tomato Wrap stuffed with lettuce, tomato and Cambrooke Foods Cheese.

3. Low Protein Penne Pasta (courtesy of SHS) with Winner’s Low Protein Marinara Sauce

All others not on diet will be ordering directly from Winner’s menu.

AGENDA:

*PKU, HCU, TYR, MSUD, Organic Acidemias and Urea Cycle insurance coverage issues.  Breakout into small groups to discuss and document issues. Come with ideas !

*State Pharmacy and Formulary Board issues

* Preview new Apples to Zucchini Cookbook by Virginia Schuett.  (Discuss www.myspecialdiet.com)

*Publix #344 at City Plaza- Tampa Palms low protein inventory of over 125 low phenylalanine foods…from low protein cheese to low protein chocolate chip cookie dough.   Updates on new items and locations throughout the store.

Please RSVP by November 27th for the dinner.  For more information,  contact Marsha Magol at magol@verizon.net or call PKU of Florida at 813-979-9059.